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Retrospective access to data: the ENGAGE consent experience
The rapid emergence of large-scale genetic databases raises issues at the nexus of medical law and ethics, as well as the need, at both national and international levels, for an appropriate and effective framework for their governance. This is even more so for retrospective access to data for second...
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| Hauptverfasser: | , , , |
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| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
Nature Publishing Group
2010
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC2987368/ https://ncbi.nlm.nih.gov/pubmed/20332813 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2010.30 |
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