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Retrospective access to data: the ENGAGE consent experience

The rapid emergence of large-scale genetic databases raises issues at the nexus of medical law and ethics, as well as the need, at both national and international levels, for an appropriate and effective framework for their governance. This is even more so for retrospective access to data for second...

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Detalhes bibliográficos
Main Authors: Tassé, Anne Marie, Budin-Ljøsne, Isabelle, Knoppers, Bartha Maria, Harris, Jennifer R
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2010
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2987368/
https://ncbi.nlm.nih.gov/pubmed/20332813
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2010.30
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