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Retrospective access to data: the ENGAGE consent experience

The rapid emergence of large-scale genetic databases raises issues at the nexus of medical law and ethics, as well as the need, at both national and international levels, for an appropriate and effective framework for their governance. This is even more so for retrospective access to data for second...

詳細記述

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書誌詳細
主要な著者: Tassé, Anne Marie, Budin-Ljøsne, Isabelle, Knoppers, Bartha Maria, Harris, Jennifer R
フォーマット: Artigo
言語:Inglês
出版事項: Nature Publishing Group 2010
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC2987368/
https://ncbi.nlm.nih.gov/pubmed/20332813
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2010.30
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