European Project for Rare Diseases National Plans Development (EUROPLAN)

Lignende værker

• The Italian National Rare Diseases Registry
  af: Taruscio, Domenica, et al.
  Udgivet: (2014)
• The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
  af: Taruscio, Domenica, et al.
  Udgivet: (2018)
• EPIRARE survey on activities and needs of rare disease registries in the European Union
  af: Taruscio, Domenica, et al.
  Udgivet: (2012)
• Recommendations for the development of national plans for rare diseases
  af: Van der Zeijden, Albert, et al.
  Udgivet: (2010)
• Shaping national plans and strategies for rare diseases in Europe: past, present, and future
  af: Hedley, Victoria, et al.
  Udgivet: (2021)