European Project for Rare Diseases National Plans Development (EUROPLAN)

Antzeko izenburuak

• The Italian National Rare Diseases Registry
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2014)
• The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2018)
• EPIRARE survey on activities and needs of rare disease registries in the European Union
  nork: Taruscio, Domenica, et al.
  Argitaratua: (2012)
• Recommendations for the development of national plans for rare diseases
  nork: Van der Zeijden, Albert, et al.
  Argitaratua: (2010)
• Shaping national plans and strategies for rare diseases in Europe: past, present, and future
  nork: Hedley, Victoria, et al.
  Argitaratua: (2021)