The added value of centres of expertise for rare disease patients in Europe

類似資料

• Perspective having a Centre of Expertise that covers more than one rare disease
  著者:: Ostergaard, John R
  出版事項: (2014)
• Involvement of Patient Organisations in Research and Development of Orphan Drugs for Rare Diseases in Europe
  著者:: Mavris, M., 等
  出版事項: (2012)
• The Swedish rare disease information database and the Swedish information centre for rare diseases
  著者:: Greek-Winald, Christina, 等
  出版事項: (2010)
• The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations
  著者:: Pogany, Gabor
  出版事項: (2010)
• Building centres of expertise according to the Dutch model?
  著者:: Gabreëls, Fons JM, 等
  出版事項: (2010)