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Newborn Screening: An Appeal for Improved Parent Education

OBJECTIVE: The purpose of this study, which was part of a larger investigation of newborn screening (NBS) for cystic fibrosis (CF), was to learn how parents were informed about NBS and obtain their suggestions for improving the process of educating parents about NBS. METHOD: Qualitative study using...

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Autors principals: Tluczek, Audrey, Orland, Kate Murphy, Nick, Sara Wolfgram, Brown, Roger L.
Format: Artigo
Idioma:Inglês
Publicat: 2009
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC2947955/
https://ncbi.nlm.nih.gov/pubmed/19915416
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/JPN.0b013e3181a1bc1f
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