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Newborn Screening: An Appeal for Improved Parent Education

OBJECTIVE: The purpose of this study, which was part of a larger investigation of newborn screening (NBS) for cystic fibrosis (CF), was to learn how parents were informed about NBS and obtain their suggestions for improving the process of educating parents about NBS. METHOD: Qualitative study using...

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Autori principali: Tluczek, Audrey, Orland, Kate Murphy, Nick, Sara Wolfgram, Brown, Roger L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2009
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC2947955/
https://ncbi.nlm.nih.gov/pubmed/19915416
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/JPN.0b013e3181a1bc1f
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