Creating a Global Rare Disease Patient Registry linked to a Rare Diseases Biorepository Database: Rare Disease - HUB (RD – HUB)

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Main Authors: Rubinstein, Yaffa R, Groft, Stephen C, Bartek, Ronald, Brown, 'Kyle, Christensen, Ronald A, Collier, Elaine, Farber, Amy, Farmer, Jennifer, Ferguson, John H, Forrest, Christopher B, Lockhart, Nicole C, McCurdy, Kate R, Moore, Helen, Pollen, Geraldine B, Richesson, Rachel, Rangel, Miller Vanessa, Hull, Sara, Vaught, Jim
Formáid: Artigo
Teanga:Inglês
Foilsithe: 2010
Ábhair:
Article
Rochtain Ar Líne:https://ncbi.nlm.nih.gov/pmc/articles/PMC2930109/
https://ncbi.nlm.nih.gov/pubmed/20609392
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.cct.2010.06.007
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