Informed consent process for patient participation in rare disease registries linked to biorepositories Contemporary Clinical Trials

समान संसाधन

• Informed consent and patient registry for the rare disease community: Editorial
  द्वारा: Grady, Christine, और अन्य
  प्रकाशित: (2011)
• Creating a Global Rare Disease Patient Registry linked to a Rare Diseases Biorepository Database: Rare Disease - HUB (RD – HUB)
  द्वारा: Rubinstein, Yaffa R, और अन्य
  प्रकाशित: (2010)
• Practical Guidance on Informed Consent for Pediatric Participants in a Biorepository
  द्वारा: Brothers, Kyle B., और अन्य
  प्रकाशित: (2014)
• Simplifying informed consent for biorepositories: Stakeholder perspectives
  द्वारा: Beskow, Laura M., और अन्य
  प्रकाशित: (2010)
• Broad consent and biorepositories for molecular epidemiology and genomics research
  द्वारा: Coughlin, Steven S
  प्रकाशित: (2011)