NIH/NCATS/GRDR(®) Common Data Elements: A leading force for standardized data collection

Por Rubinstein, Yaffa R., McInnes, Pamela
Publicado no Contemp Clin Trials (2015)

Informed consent and patient registry for the rare disease community: Editorial

Por Grady, Christine, Rubinstein, Yaffa R., Groft, Stephen C.
Publicado no Contemp Clin Trials (2011)

Chromosomal protein HMGN1 modulates the expression of N-cadherin

Por Rubinstein, Yaffa R., Furusawa, Takashi, Lim, Jae-Hwan, Postnikov, Yuri V., West, Katherine L., Birger, Yehudit, Lee, Sunmin, Nguyen, Phuongmai, Trepel, Jane B., Bustin, Michael
Publicado em 2005

Informed consent process for patient participation in rare disease registries linked to biorepositories Contemporary Clinical Trials

Por Rubinstein, Yaffa R., Groft, Stephen C., Chandros, Sara Hull, Kaneshiro, Julie, Karp, Barbara, Lockhart, Nicole C., Marshall, Patricia A., Moxley, Richard T., Pollen, Geraldine B., Rangel Miller, Vanessa, Schwartz, Jack
Publicado no Contemp Clin Trials (2011)

Creating a Global Rare Disease Patient Registry linked to a Rare Diseases Biorepository Database: Rare Disease - HUB (RD – HUB)

Por Rubinstein, Yaffa R, Groft, Stephen C, Bartek, Ronald, Brown, 'Kyle, Christensen, Ronald A, Collier, Elaine, Farber, Amy, Farmer, Jennifer, Ferguson, John H, Forrest, Christopher B, Lockhart, Nicole C, McCurdy, Kate R, Moore, Helen, Pollen, Geraldine B, Richesson, Rachel, Rangel, Miller Vanessa, Hull, Sara, Vaught, Jim
Publicado em 2010