The PedsQL™ in Pediatric Patients with Spinal Muscular Atrophy: Feasibility, Reliability, and Validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular Module

For Phase II and III clinical trials in children with Spinal Muscular Atrophy (SMA), reliable and valid outcome measures are necessary. Since 2000, the American Spinal Muscular Atrophy Randomized Trials (AmSMART) group has established reliability and validity for measures of strength, lung function,...

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Bibliografische gegevens
Hoofdauteurs: Iannaccone, Susan T., Hynan, Linda S., Morton, Anne, Buchanan, Renee, Limbers, Christine A., Varni, James W.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: 2009
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Article
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC2796341/
https://ncbi.nlm.nih.gov/pubmed/19846309
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.nmd.2009.09.009
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