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Questioning the Consensus: Managing Carrier Status Results Generated by Newborn Screening

An apparent consensus governs the management of carrier status information generated incidentally through newborn screening: results cannot be withheld from parents. This normative stance encodes the focus on autonomy and distaste for paternalism that characterize the principles of clinical bioethic...

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Detalhes bibliográficos
Main Authors: Miller, Fiona Alice, Robert, Jason Scott, Hayeems, Robin Z.
Formato: Artigo
Idioma:Inglês
Publicado em: American Public Health Association 2009
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2622768/
https://ncbi.nlm.nih.gov/pubmed/19059852
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2105/AJPH.2008.136614
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