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Understanding sickle cell carrier status identified through newborn screening: a qualitative study

The expansion of newborn screening (NBS) is increasing the generation of incidental results, notably carrier results. Although carrier status is generally understood to be clinically benign, concerns persist that parents may misunderstand its meaning, with deleterious effects on children and their f...

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Detalhes bibliográficos
Main Authors: Miller, Fiona A, Paynter, Martha, Hayeems, Robin Z, Little, Julian, Carroll, June C, Wilson, Brenda J, Allanson, Judith, Bytautas, Jessica P, Chakraborty, Pranesh
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2010
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2987218/
https://ncbi.nlm.nih.gov/pubmed/19809482
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2009.173
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