Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations

Abstract Objectives Family engagement at a research project-level is well-studied in childhood-onset disability research, yet organizational-level family engagement (e.g., advisory boards, policy review, mentorship) remains less understood. The objective of this organizational research study was the...

Volledige beschrijving

Bibliografische gegevens

Hoofdauteurs:	Samantha K. Micsinszki, Andrea Cross, Alice Kelen Soper, Donna Thomson, Connie Putterman, Rachel Martens, Dayle McCauley, Jennifer Zwicker, James N. Reynolds, Jan Willem Gorter, Michelle Phoenix
Formaat:	Artigo
Taal:	Inglês
Gepubliceerd in:	BMC 2026-07-01
Reeks:	Research Involvement and Engagement
Onderwerpen:	Family engagement Organizational-level engagement SWOT analysis Qualitative description Patient-oriented research Neurodevelopmental disability
Online toegang:	https://doi.org/10.1186/s40900-026-00932-2
Tags:	Voeg label toe Geen labels, Wees de eerste die dit record labelt!