Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations

Abstract Objectives Family engagement at a research project-level is well-studied in childhood-onset disability research, yet organizational-level family engagement (e.g., advisory boards, policy review, mentorship) remains less understood. The objective of this organizational research study was the...

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Autors principals:	Samantha K. Micsinszki, Andrea Cross, Alice Kelen Soper, Donna Thomson, Connie Putterman, Rachel Martens, Dayle McCauley, Jennifer Zwicker, James N. Reynolds, Jan Willem Gorter, Michelle Phoenix
Format:	Artigo
Idioma:	Inglês
Publicat:	BMC 2026-07-01
Col·lecció:	Research Involvement and Engagement
Matèries:	Family engagement Organizational-level engagement SWOT analysis Qualitative description Patient-oriented research Neurodevelopmental disability
Accés en línia:	https://doi.org/10.1186/s40900-026-00932-2
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