Implementing informed consent in federated medical research: a blueprint designed to safeguard data subject rights in Germany

Abstract Background The establishment of the complementary infrastructures Medical Informatics Initiative (MII) and the Network of University Medicine (NUM) has significantly advanced the medical research landscape in Germany. Both infrastructures focus on the cross-institutional integration of heal...

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Λεπτομέρειες βιβλιογραφικής εγγραφής

Κύριοι συγγραφείς:	Christopher Hampf, Astrid Wiebke Pley, Peter Penndorf, Frank Michael Moser, Stefan Lang, Patrick Werner, Anika Kästner, Torsten Leddig, Dana Stahl, Wolfgang Hoffmann, Martin Bialke
Μορφή:	Artigo
Γλώσσα:	Inglês
Έκδοση:	BMC 2026-06-01
Σειρά:	Journal of Translational Medicine
Θέματα:	Federated consent management Informed consent Objection Withdrawal GDPR Patient rights
Διαθέσιμο Online:	https://doi.org/10.1186/s12967-026-08437-y
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