Implementing informed consent in federated medical research: a blueprint designed to safeguard data subject rights in Germany

Abstract Background The establishment of the complementary infrastructures Medical Informatics Initiative (MII) and the Network of University Medicine (NUM) has significantly advanced the medical research landscape in Germany. Both infrastructures focus on the cross-institutional integration of heal...

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Autori principali:	Christopher Hampf, Astrid Wiebke Pley, Peter Penndorf, Frank Michael Moser, Stefan Lang, Patrick Werner, Anika Kästner, Torsten Leddig, Dana Stahl, Wolfgang Hoffmann, Martin Bialke
Natura:	Artigo
Lingua:	Inglês
Pubblicazione:	BMC 2026-06-01
Serie:	Journal of Translational Medicine
Soggetti:	Federated consent management Informed consent Objection Withdrawal GDPR Patient rights
Accesso online:	https://doi.org/10.1186/s12967-026-08437-y
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