Characterizing and quantifying disease impacts of generalized myasthenia gravis (gMG) in the United States: insights from patient and caregiver interviews and surveys

Abstract Background Treatment value is traditionally assessed through clinical benefits, health-related quality of life, and healthcare utilization. However, rare diseases such as generalized myasthenia gravis (gMG) that heavily affect families and/or caregivers require a more holistic approach that...

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Detalhes bibliográficos

Principais autores:	Pushpa Narayanaswami, Jamie Sullivan, Craig Thiele, Christina Ramirez, Susan dosReis, Allison Foss, Karen S. Yee, Mayvis Rebeira, Naila Wahid, Alexis C. Garduno, Elizabeth Crevier, Christine Rowe, Kelly G. Gwathmey
Formato:	Artigo
Idioma:	Inglês
Publicado em:	SpringerOpen 2026-06-01
coleção:	Journal of Patient-Reported Outcomes
Assuntos:	Myasthenia gravis gMG Disease burden Interview Survey Caregiver
Acesso em linha:	https://doi.org/10.1186/s41687-026-01124-y
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