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Characterizing and quantifying disease impacts of generalized myasthenia gravis (gMG) in the United States: insights from patient and caregiver interviews and surveys

Abstract Background Treatment value is traditionally assessed through clinical benefits, health-related quality of life, and healthcare utilization. However, rare diseases such as generalized myasthenia gravis (gMG) that heavily affect families and/or caregivers require a more holistic approach that...

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Principais autores: Pushpa Narayanaswami, Jamie Sullivan, Craig Thiele, Christina Ramirez, Susan dosReis, Allison Foss, Karen S. Yee, Mayvis Rebeira, Naila Wahid, Alexis C. Garduno, Elizabeth Crevier, Christine Rowe, Kelly G. Gwathmey
Formato: Artigo
Idioma:Inglês
Publicado: SpringerOpen 2026-06-01
Series:Journal of Patient-Reported Outcomes
Assuntos:
Myasthenia gravis
gMG
Disease burden
Interview
Survey
Caregiver
Acceso en liña:https://doi.org/10.1186/s41687-026-01124-y
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