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Developing neuropalliative care for sporadic Creutzfeldt-Jakob Disease

We aimed to identify targets for neuropalliative care interventions in sporadic Creutzfeldt-Jakob disease by examining characteristics of patients and sources of distress and support among former caregivers. We identified caregivers of decedents with sporadic Creutzfeldt-Jakob disease from the Unive...

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Hoofdauteurs: Krista L. Harrison, Sarah B. Garrett, Joni Gilissen, Michael J. Terranova, Alissa Bernstein Sideman, Christine S. Ritchie, Michael D. Geschwind
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: Taylor & Francis Group 2022-12-01
Reeks:Prion
Onderwerpen:
Sporadic Creutzfeldt-Jakob
palliative
qualitative
mixed methods
caregiver
Online toegang:https://www.tandfonline.com/doi/10.1080/19336896.2022.2043077
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