Patient-reported, health economic and psychosocial outcomes in patients with Friedreich ataxia (PROFA): protocol of an observational study using momentary data assessments via mobile health app

Introduction Friedreich ataxia (FA) is the most common hereditary ataxia in Europe, characterised by progressively worsening movement and speech impairments with a typical onset before the age of 25 years. The symptoms affect the patients’ health-related quality of life (HRQoL) and psychosocial heal...

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Автори:	Jörg B Schulz, Kathrin Reetz, Sabrina Sayah, Feng Xie, Ludger Schöls, Thomas Klockgether, Thomas Klopstock, Sylvia Boesch, Alexandra Dürr, Elin Haf Davies, Maresa Buchholz, Niklas Weber, Stephanie Borel, Ivan Karin, Marcus Grobe-Einsler, Madeleine Schmeder, Andreas Nadke, Bernhard Michalowsky
Формат:	Artigo
Мова:	Inglês
Опубліковано:	BMJ Publishing Group 2023-08-01
Серія:	BMJ Open
Онлайн доступ:	https://bmjopen.bmj.com/content/13/8/e075736.full
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