Education and information needs for physicians about rare diseases in Spain

Abstract Background Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this...

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Bibliografiske detaljer

Principais autores:	Enrique Ramalle-Gómara, Elena Domínguez-Garrido, María Gómez-Eguílaz, María Eugenia Marzo-Sola, José Luis Ramón-Trapero, Josefa Gil-de-Gómez
Format:	Artigo
Sprog:	Inglês
Udgivet:	BMC 2020-01-01
Serier:	Orphanet Journal of Rare Diseases
Fag:	Rare diseases Education and information needs Clinicians Survey
Online adgang:	https://doi.org/10.1186/s13023-019-1285-0
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