Exploring the use of smartphone monitoring for young adults with Tuberous Sclerosis Complex (TSC): a qualitative analysis

Abstract Background Smartphone ecological momentary assessment (Smart EMA) has the potential to address limitations in standardised cross-sectional self-report assessments. Young adults with rare genetic conditions, including Tuberous Sclerosis Complex (TSC), may further benefit from Smart EMA as it...

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Bibliografiska uppgifter

Huvudupphov:	Kate Fifield, Katie Blackford, Benjamin Snaith, Anishka Singhania, Charlotte Tye, Sara Simblett
Materialtyp:	Artigo
Språk:	Inglês
Utgiven:	BMC 2026-04-01
Serie:	Orphanet Journal of Rare Diseases
Ämnen:	Tuberous Sclerosis Complex Ecological momentary assessment Experience sample method Focus group Interview Qualitative
Länkar:	https://doi.org/10.1186/s13023-026-04287-5
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