Exploring the use of smartphone monitoring for young adults with Tuberous Sclerosis Complex (TSC): a qualitative analysis

Abstract Background Smartphone ecological momentary assessment (Smart EMA) has the potential to address limitations in standardised cross-sectional self-report assessments. Young adults with rare genetic conditions, including Tuberous Sclerosis Complex (TSC), may further benefit from Smart EMA as it...

ver descrição completa

Detalhes bibliográficos

Principais autores:	Kate Fifield, Katie Blackford, Benjamin Snaith, Anishka Singhania, Charlotte Tye, Sara Simblett
Formato:	Artigo
Idioma:	Inglês
Publicado em:	BMC 2026-04-01
coleção:	Orphanet Journal of Rare Diseases
Assuntos:	Tuberous Sclerosis Complex Ecological momentary assessment Experience sample method Focus group Interview Qualitative
Acesso em linha:	https://doi.org/10.1186/s13023-026-04287-5
Tags:	Adicionar Tag Sem tags, seja o primeiro a adicionar uma tag!