A human centred innovative approach based on persona in hereditary angioedema

Abstract Background Hereditary Angioedema (HAE) due to C1-inhibitor deficiency (C1INH) is a rare condition, clinically characterised by recurrent swelling. The unpredictability of attacks affects the patients’ quality of life (QoL). HAE patients and their families have vast unmet physical, psycholog...

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Principais autores:	Francesca Perego, Lorenza Chiara Zingale, Azzurra Cesoni Marcelli, Luca Ranucci, Lorenzo Rimoldi, Nurgul Nsanbayeva, Maria Rosaria Natale, Laura Adelaide Dalla Vecchia, Alessandra Gorini
פורמט:	Artigo
שפה:	Inglês
יצא לאור:	BMC 2024-08-01
סדרה:	Orphanet Journal of Rare Diseases
נושאים:	Hereditary angioedema Personas Human center design Unmet needs Prevention Rehabilitation
גישה מקוונת:	https://doi.org/10.1186/s13023-024-03302-x
תגים:	הוספת תג אין תגיות, היה/י הראשונ/ה לתייג את הרשומה!