Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals

Abstract Background Poorly coordinated care can have major impacts on patients and families affected by rare conditions, with negative physical health, psychosocial and financial consequences. This study aimed to understand how care is coordinated for rare diseases in the United Kingdom. Methods We...

Повний опис

Бібліографічні деталі

Автори:	Holly Walton, Pei Li Ng, Amy Simpson, Lara Bloom, Lyn S. Chitty, Naomi J. Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Sharon Parkes, Angus I. G. Ramsay, Alastair Sutcliffe, Christine Taylor, Stephen Morris
Формат:	Artigo
Мова:	Inglês
Опубліковано:	BMC 2023-11-01
Серія:	Orphanet Journal of Rare Diseases
Предмети:	Rare conditions Rare diseases Care coordination Survey Care plan Care coordinator
Онлайн доступ:	https://doi.org/10.1186/s13023-023-02934-9
Теги:	Додати тег Немає тегів, Будьте першим, хто поставить тег для цього запису!