Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey

Abstract Background Although individually rare, collectively, rare conditions are common and affect a large number of people and are often chronic, life threatening and affect multiple body systems; the majority of them have no effective treatment. The literature has identified many specific challen...

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Bibliografiset tiedot

Päätekijät:	Jennifer Jones, Marie Cruddas, Amy Simpson, Nick Meade, Daphnee Pushparajah, Michelle Peter, Amy Hunter
Aineistotyyppi:	Artigo
Kieli:	Inglês
Julkaistu:	BMC 2024-02-01
Sarja:	Orphanet Journal of Rare Diseases
Aiheet:	Rare conditions Patient experience Overall care Exploratory analysis
Linkit:	https://doi.org/10.1186/s13023-024-03081-5
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