Patient Centricity in Patient Preference Studies: The Patient Perspective

Por van Overbeeke, Eline, Vanbinst, Inès, Jimenez-Moreno, Aura Cecilia, Huys, Isabelle
Publicado no Front Med (Lausanne) (2020)

Willingness to Wait for a Vaccine Against COVID-19: Results of a Preference Survey

Por Tervonen, Tommi, Jimenez-Moreno, Aura Cecilia, Krucien, Nicolas, Gelhorn, Heather, Marsh, Kevin, Heidenreich, Sebastian
Publicado no Patient (2020)

Association of sleep, screen time and physical activity with overweight and obesity in Mexico

Por Kolovos, Spyros, Jimenez-Moreno, Aura Cecilia, Pinedo-Villanueva, Rafael, Cassidy, Sophie, Zavala, Gerardo A.
Publicado no Eat Weight Disord (2019)

Analyzing walking speeds with ankle and wrist worn accelerometers in a cohort with myotonic dystrophy

Por Jimenez-Moreno, Aura Cecilia, Charman, Sarah J., Nikolenko, Nikoletta, Larweh, Maxwell, Turner, Chris, Gorman, Grainne, Lochmüller, Hanns, Catt, Michael
Publicado no Disabil Rehabil (2018)

Measuring Habitual Physical Activity in Neuromuscular Disorders: A Systematic Review

Por Jimenez-Moreno, Aura Cecilia, Newman, Jane, Charman, Sarah J., Catt, Michael, Trenell, Michael I., Gorman, Grainne S., Hogrel, Jean-Yves, Lochmüller, Hanns
Publicado no J Neuromuscul Dis (2017)

Analysis of the functional capacity outcome measures for myotonic dystrophy

Por Jimenez‐Moreno, Aura Cecilia, Nikolenko, Nikoletta, Kierkegaard, Marie, Blain, Alasdair P., Newman, Jane, Massey, Charlotte, Moat, Dionne, Sodhi, Jas, Atalaia, Antonio, Gorman, Grainne S., Turner, Chris, Lochmüller, Hanns
Publicado no Ann Clin Transl Neurol (2019)

Associations Between Variant Repeat Interruptions and Clinical Outcomes in Myotonic Dystrophy Type 1

Por Wenninger, Stephan, Cumming, Sarah A., Gutschmidt, Kristina, Okkersen, Kees, Jimenez-Moreno, Aura Cecilia, Daidj, Ferroudja, Lochmüller, Hanns, Hogarth, Fiona, Knoop, Hans, Bassez, Guillaume, Monckton, Darren G., van Engelen, Baziel G.M., Schoser, Benedikt
Publicado no Neurol Genet (2021)

The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical research

Por Wood, Libby, Cordts, Isabell, Atalaia, Antonio, Marini-Bettolo, Chiara, Maddison, Paul, Phillips, Margaret, Roberts, Mark, Rogers, Mark, Hammans, Simon, Straub, Volker, Petty, Richard, Orrell, Richard, Monckton, Darren G., Nikolenko, Nikoletta, Jimenez-Moreno, Aura Cecilia, Thompson, Rachel, Hilton-Jones, David, Turner, Chris, Lochmüller, Hanns
Publicado no J Neurol (2017)

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease

Por Wood, Libby, Bassez, Guillaume, Bleyenheuft, Corinne, Campbell, Craig, Cossette, Louise, Jimenez-Moreno, Aura Cecilia, Dai, Yi, Dawkins, Hugh, Manera, Jorge Alberto Diaz, Dogan, Celine, el Sherif, Rasha, Fossati, Barbara, Graham, Caroline, Hilbert, James, Kastreva, Kristinia, Kimura, En, Korngut, Lawrence, Kostera-Pruszczyk, Anna, Lindberg, Christopher, Lindvall, Bjorn, Luebbe, Elizabeth, Lusakowska, Anna, Mazanec, Radim, Meola, Giovani, Orlando, Liannna, Takahashi, Masanori P., Peric, Stojan, Puymirat, Jack, Rakocevic-Stojanovic, Vidosava, Rodrigues, Miriam, Roxburgh, Richard, Schoser, Benedikt, Segovia, Sonia, Shatillo, Andriy, Thiele, Simone, Tournev, Ivailo, van Engelen, Baziel, Vohanka, Stanislav, Lochmüller, Hanns
Publicado no Orphanet J Rare Dis (2018)

Correction to: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease

Por Wood, Libby, Bassez, Guillaume, Bleyenheuft, Corinne, Campbell, Craig, Cossette, Louise, Jimenez-Moreno, Aura Cecilia, Dai, Yi, Dawkins, Hugh, Díaz-Manera, Jordi, Dogan, Celine, el Sherif, Rasha, Fossati, Barbara, Graham, Caroline, Hilbert, James, Kastreva, Kristinia, Kimura, En, Korngut, Lawrence, Kostera-Pruszczyk, Anna, Lindberg, Christopher, Lindvall, Bjorn, Luebbe, Elizabeth, Lusakowska, Anna, Mazanec, Radim, Meola, Giovani, Orlando, Liannna, Takahashi, Masanori P., Peric, Stojan, Puymirat, Jack, Rakocevic-Stojanovic, Vidosava, Rodrigues, Miriam, Roxburgh, Richard, Schoser, Benedikt, Segovia, Sonia, Shatillo, Andriy, Thiele, Simone, Tournev, Ivailo, van Engelen, Baziel, Vohanka, Stanislav, Lochmüller, Hanns
Publicado no Orphanet J Rare Dis (2019)