Ethical Issues in Pediatric Genetic Testing and Screening for Current Opinion in Pediatrics

Por Botkin, Jeffrey R.
Publicado no Curr Opin Pediatr (2016)

Whole Genome Sequencing and Newborn Screening

Por Botkin, Jeffrey R., Rothwell, Erin
Publicado no Curr Genet Med Rep (2016)

The Influence of Education on Public Trust and Consent Preferences with Residual Newborn Screening Dried Bloodspots

Por Rothwell, Erin, Wong, Bob, Anderson, Rebecca A., Botkin, Jeffrey R.
Publicado no J Empir Res Hum Res Ethics (2016)

Integrating a Federated Healthcare Data Query Platform With Electronic IRB Information Systems

Por He, Shan, Hurdle, John F., Botkin, Jeffrey R., Narus, Scott P.
Publicado em 2010

State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples

Por Lewis, Michelle H., Goldenberg, Aaron, Anderson, Rebecca, Rothwell, Erin, Botkin, Jeffrey
Publicado em 2011

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

Por Goldenberg, Aaron J., Hull, Sara Chandros, Botkin, Jeffrey R., Wilfond, Benjamin S.
Publicado no J Pediatr (2009)

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Por Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce
Publicado em 2013

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Por Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce
Publicado no J Community Genet (2015)

Public Attitudes Regarding a Pilot Study of Newborn Screening for Spinal Muscular Atrophy

Por Rothwell, Erin, Anderson, Rebecca A., Swoboda, Kathryn J., Stark, Louisa, Botkin, Jeffrey R.
Publicado em 2013

Retention and Research Use of Residual Newborn Screening Bloodspots

Por Botkin, Jeffrey R., Goldenberg, Aaron J., Rothwell, Erin, Anderson, Rebecca A., Lewis, Michelle Huckaby
Publicado em 2013

Proposed Regulations for Research with Biospecimens: Responses from Stakeholders at CTSA Consortium Institutions

Por Botkin, Jeffrey R, Anderson, Rebecca, Murray, Tom, Beskow, Laura M., Maschke, Karen, Cuttler, Leona
Publicado em 2014

Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research

Por Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa, Goldenberg, Aaron, Lewis, Michelle, Burbank, Matthew, Wong, Bob
Publicado em 2012

The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider

Por Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah
Publicado em 2010

Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework

Por Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah
Publicado em 2010

NINE KEY FUNCTIONS FOR A HUMAN SUBJECTS PROTECTION PROGRAM FOR COMMUNITY-ENGAGED RESEARCH: POINTS TO CONSIDER

Por Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah
Publicado em 2010

Assessing Public Attitudes on the Retention and Use of Residual Newborn Screening Blood Samples: A Focus Group Study

Por Rothwell, Erin, Anderson, Rebecca, Goldenberg, Aaron, Lewis, Michelle H, Stark, Louisa, Burbank, Matthew, Wong, Bob, Botkin, Jeffrey R
Publicado em 2012

Success Rates for Consent and Collection of Prenatal Biological Specimens in an Epidemiologic Survey of Child Health

Por Abdul-Rahman, Omar A., Rodriguez, Beatriz, Wadlinger, Sandi, Slutsman, Julia, Boyle, Elizabeth B., Merrill, Lori, Botkin, Jeffrey, Moye, Jack
Publicado no Birth Defects Res A Clin Mol Teratol (2015)

Interpersonal Responses Among Sibling Dyads Tested for BRCA1/BRCA2 Gene Mutations

Por Hamann, Heidi A., Croyle, Robert T., Smith, Timothy W., Smith, Ken R., Ruiz, John M., Kircher, John C., Botkin, Jeffrey R.
Publicado em 2008

What Parents Want to Know about the Storage and Use of Residual Newborn Bloodspots

Por Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca A., Goldenberg, Aaron, Kuppermann, Miriam, Dolan, Siobhan M., Rose, Nancy C., Stark, Louisa
Publicado em 2014

Investigator Experiences and Attitudes about Research with Biospecimens

Por Rivera, Suzanne M., Goldenberg, Aaron, Rosenthal, Beth, Aungst, Heide, Maschke, Karen J., Rothwell, Erin, Anderson, Rebecca A., Botkin, Jeffrey, Joffe, Steven
Publicado no J Empir Res Hum Res Ethics (2015)