Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

OBJECTIVES: To provide lay information about genetics and sickle cell disease (SCD) and to identify and address ethical issues concerning the Sickle Cell Disease Genomics of Africa Network covering autonomy and research decision-making, risk of SCD complications and organ damage, returning of genomi...

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Detalhes bibliográficos
Publicado no:BMJ Open
Main Authors: Anie, Kofi A, Olayemi, Edeghonghon, Paintsil, Vivian, Owusu-Dabo, Ellis, Adeyemo, Titilope Adenike, Sani, Mahmoud U, Galadanci, Najibah Aliyu, Nnodu, Obiageli, Tluway, Furahini, Adjei, David Nana, Mensah, Peter, Sarfo-Antwi, Joseph, Nwokobia, Henry, Gambo, Awwal, Benjamin, Adebola, Salim, Arafa, Osae-Larbi, Judith A, Ofori-Acquah, Solomon Fiifi
Formato: Artigo
Idioma:Inglês
Publicado em: BMJ Publishing Group 2021
Assuntos:
Haematology (Incl Blood Transfusion)
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC8311318/
https://ncbi.nlm.nih.gov/pubmed/34301659
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2020-048208
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