Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

OBJECTIVES: To provide lay information about genetics and sickle cell disease (SCD) and to identify and address ethical issues concerning the Sickle Cell Disease Genomics of Africa Network covering autonomy and research decision-making, risk of SCD complications and organ damage, returning of genomi...

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Dades bibliogràfiques
Publicat a:BMJ Open
Autors principals: Anie, Kofi A, Olayemi, Edeghonghon, Paintsil, Vivian, Owusu-Dabo, Ellis, Adeyemo, Titilope Adenike, Sani, Mahmoud U, Galadanci, Najibah Aliyu, Nnodu, Obiageli, Tluway, Furahini, Adjei, David Nana, Mensah, Peter, Sarfo-Antwi, Joseph, Nwokobia, Henry, Gambo, Awwal, Benjamin, Adebola, Salim, Arafa, Osae-Larbi, Judith A, Ofori-Acquah, Solomon Fiifi
Format: Artigo
Idioma:Inglês
Publicat: BMJ Publishing Group 2021
Matèries:
Haematology (Incl Blood Transfusion)
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC8311318/
https://ncbi.nlm.nih.gov/pubmed/34301659
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2020-048208
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