Balancing scientific interests and the rights of participants in designing a recall by genotype study

Recall by genotype (RbG) studies aim to better understand the phenotypes that correspond to genetic variants of interest, by recruiting carriers of such variants for further phenotyping. RbG approaches pose major ethical and legal challenges related to the disclosure of possibly unwanted genetic inf...

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Bibliografische gegevens
Gepubliceerd in:Eur J Hum Genet
Hoofdauteurs: Mascalzoni, Deborah, Biasiotto, Roberta, Borsche, Max, Brüggemann, Norbert, De Grandi, Alessandro, Goegele, Martin, Frygner-Holm, Sara, Klein, Christine, Kösters, Maria, Staunton, Ciara, Pramstaller, Peter P., Krawczak, Michael, Hicks, Andrew A.
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: Springer International Publishing 2021
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Article
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC8298596/
https://ncbi.nlm.nih.gov/pubmed/33981014
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/s41431-021-00860-7
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