Patient-reported impact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG)

INTRODUCTION: Myasthenia gravis (MG) is a rare, chronic, autoimmune disease, mediated by immunoglobulin G antibodies, which causes debilitating muscle weakness. As with most rare diseases, there is little patient-reported data with which to understand and address patient needs. This study explores t...

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Dades bibliogràfiques
Publicat a:BMJ Open
Autors principals: Berrih-Aknin, Sonia, Claeys, Kristl G, Law, Nancy, Mantegazza, Renato, Murai, Hiroyuki, Saccà, Francesco, Dewilde, Sarah, Janssen, Mathieu F, Bagshaw, Emma, Kousoulakou, Hara, Larkin, Mark, Beauchamp, Jon, Leighton, Trevor, Paci, Sandra
Format: Artigo
Idioma:Inglês
Publicat: BMJ Publishing Group 2021
Matèries:
Neurology
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC8292816/
https://ncbi.nlm.nih.gov/pubmed/34285010
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjopen-2020-048198
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