Acceptability of patient reported outcome measures (PROMs) in a cystic fibrosis data registry

INTRODUCTION: Improvements in the treatment of cystic fibrosis (CF) have resulted in longer survival and an increased focus on optimising daily functioning with the condition. Patient-reported outcome measures (PROMs) are valuable tools in evaluating the health-related quality of life of persons wit...

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Vydáno v:BMJ Open Respir Res
Hlavní autoři: Ratnayake, Irushi, Ahern, Susannah, Ruseckaite, Rasa
Médium: Artigo
Jazyk:Inglês
Vydáno: BMJ Publishing Group 2021
Témata:
Cystic Fibrosis
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC8291302/
https://ncbi.nlm.nih.gov/pubmed/34281916
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/bmjresp-2021-000927
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