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“Suddenly we have hope that there is a future”: two families’ narratives when a child with spinal muscular atrophy receives a new drug
Purpose: This study aims to explore negotiations of hope in everyday life for families where a child with spinal muscular atrophy (SMA) has received a new drug treatment. Methods: A narrative design was used, drawing on interviews and participant observations in two families with children with SMA,...
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| Publicado no: | Int J Qual Stud Health Well-being |
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| Main Authors: | , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Taylor & Francis
2021
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8216061/ https://ncbi.nlm.nih.gov/pubmed/33789523 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/17482631.2021.1904722 |
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