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Family Genetic Result Communication in Rare and Undiagnosed Disease Communities: Understanding the Practice

Genetic results have implications not only for the individual, but also for their family members. Research on family communication of genetic results has primarily focused on families affected by adult-onset, dominant conditions as well as more common genetic conditions such as familial hypercholest...

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Bibliografische gegevens
Gepubliceerd in:J Genet Couns
Hoofdauteurs: Studwell, Courtney M., Kelley, Emily G., Sinsheimer, Janet S., Palmer, Christina G. S., LeBlanc, Kimberly
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: 2020
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Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC8207526/
https://ncbi.nlm.nih.gov/pubmed/33108040
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1329
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