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A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada
BACKGROUND: The highly sensitive nature of genomic and associated clinical data, coupled with the consent-related vulnerabilities of children together accentuate ethical, legal and social issues (ELSI) concerning data sharing. The Key Implications of Data Sharing (KIDS) framework was therefore devel...
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| Pubblicato in: | BMC Med Ethics |
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| Autori principali: | , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
BioMed Central
2021
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8191056/ https://ncbi.nlm.nih.gov/pubmed/34107925 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12910-021-00635-1 |
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