Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)

INTRODUCTION: This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged <4 years. A secondary aim was to develop and validate the new tool. METH...

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Veröffentlicht in:Res Pract Thromb Haemost
Hauptverfasser: Dover, Saunya, Young, Nancy L., Blanchette, Victor S., Klaassen, Robert J., Chan, Anthony K., Wakefield, Cindy, Bouskill, Vanessa, Carcao, Manuel, Belletrutti, Mark, Bruce, Aisha A. K., Price, Victoria E.
Format: Artigo
Sprache:Inglês
Veröffentlicht: John Wiley and Sons Inc. 2021
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Original Articles
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC8114030/
https://ncbi.nlm.nih.gov/pubmed/34013152
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/rth2.12519
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