Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study

BACKGROUND: For communities of people living with hemophilia and other genetic conditions, gene therapy could represent a paradigm shift in treatment strategies. As investigational therapeutic modalities such as gene therapy become more widely used and discussed, there is a critical need for all sta...

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Bibliografske podrobnosti
izdano v:Orphanet J Rare Dis
Main Authors: Hart, Daniel P., Branchford, Brian R., Hendry, Sarah, Ledniczky, Robert, Sidonio, Robert F., Négrier, Claude, Kim, Michelle, Rice, Michelle, Minshall, Matthew, Arcé, Claire, Prince, Steve, Kelleher, Maria, Lee, Sharon
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2021
Teme:
Research
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC8082836/
https://ncbi.nlm.nih.gov/pubmed/33910590
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01555-w
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