Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions

Patient-Powered Research Networks (PPRNs) are US-based registry infrastructures co-created by advocacy groups, patient research partners, academic investigators, and other healthcare stakeholders. Patient-Powered Research Networks collect information directly from patients to conduct and disseminate...

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Detalles Bibliográficos
Publicado en:Patient
Autores principales: Nowell, W. Benjamin, Merkel, Peter A., McBurney, Robert N., Young, Kalen, Venkatachalam, Shilpa, Shaw, Dianne G., Dobes, Angela, Cerciello, Emily, Kolaczkowski, Laura, Curtis, Jeffrey R., Kappelman, Michael D.
Formato: Artigo
Lenguaje:Inglês
Publicado: Springer International Publishing 2021
Materias:
Practical Application
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC8075709/
https://ncbi.nlm.nih.gov/pubmed/33904145
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-021-00515-1
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