“Is that something that should concern me?”: a qualitative exploration of parent understanding of their child’s genomic test results

Genetic counselors are trained to deliver complicated genomic test results to parents of pediatric patients. However, there is limited knowledge on how parents perceive this information and what they understand about the results. This research aims to qualitatively explore parents’ experiences recei...

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Detalles Bibliográficos
Publicado en:HGG Adv
Main Authors: Watnick, Dana, Odgis, Jacqueline A., Suckiel, Sabrina A., Gallagher, Katie M., Teitelman, Nehama, Donohue, Katherine E., Gelb, Bruce D., Kenny, Eimear E., Wasserstein, Melissa P., Horowitz, Carol R., Dolan, Siobhan M., Bauman, Laurie J.
Formato: Artigo
Idioma:Inglês
Publicado: Elsevier 2021
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Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC8057699/
https://ncbi.nlm.nih.gov/pubmed/33884375
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.xhgg.2021.100027
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