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Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward sharing with health professionals and researchers. These requests ra...

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Detalhes bibliográficos
Publicado no:Front Genet
Main Authors: Beauvais, Michael J. S., Thorogood, Adrian M., Szego, Michael J., Sénécal, Karine, Zawati, Ma'n H., Knoppers, Bartha Maria
Formato: Artigo
Idioma:Inglês
Publicado em: Frontiers Media S.A. 2021
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC8044527/
https://ncbi.nlm.nih.gov/pubmed/33868358
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3389/fgene.2021.535340
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