How to Advance Research, Education, and Training in the Study of Rare Diseases

Antzeko izenburuak

• The Rare Diseases Clinical Research Network’s Organization and Approach to Observational Research and Health Outcomes Research
  nork: Krischer, Jeffrey P., et al.
  Argitaratua: (2014)
• The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network
  nork: Merkel, Peter A., et al.
  Argitaratua: (2016)
• Rare Diseases Research: Expanding Collaborative Translational Research Opportunities
  nork: Groft, Stephen C.
  Argitaratua: (2013)
• Research Into Rare Diseases of Childhood
  nork: Batshaw, Mark L., et al.
  Argitaratua: (2014)
• CLINICAL RESEARCH FOR RARE DISEASE: OPPORTUNITIES, CHALLENGES, AND SOLUTIONS
  nork: Griggs, Robert C., et al.
  Argitaratua: (2008)