eHealth for patients with rare diseases: the eHealth Working Group of the European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN)

BACKGROUND: The European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN) was launched in 2017 and involves, to date, 35 highly specialised multidisciplinary expert centres (from the 30 full Healthcare Provider members) coming from 11 countries and more than 70 patient organizatio...

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Detalles Bibliográficos
Publicado en:Orphanet J Rare Dis
Main Authors: Paglialonga, Alessia, Gaetano, Raffaella, Robert, Leema, Hurard, Marine, Botella, Luisa Maria, Barr, Natasha, Jondeau, Guillaume, Pini, Alessandro
Formato: Artigo
Idioma:Inglês
Publicado: BioMed Central 2021
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Position Statement
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC8034087/
https://ncbi.nlm.nih.gov/pubmed/33832526
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01604-4
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