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Effective Provider-Patient Communication of a Rare Disease Diagnosis: A Qualitative Study of People Diagnosed with Schwannomatosis
OBJECTIVE: To understand diagnostic communication preferences of patients with schwannomatosis, a rare disease. METHODS: Eighteen adults with schwannomatosis from across the United States participated in semi-structured phone interviews about their diagnostic experiences. Interview transcripts were...
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| Publicado no: | Patient Educ Couns |
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| Main Authors: | , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8004534/ https://ncbi.nlm.nih.gov/pubmed/33051127 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.pec.2020.09.029 |
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