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Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis—A multicenter prospective study

BACKGROUND: Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected child and its family, is crucial to depict treatment effects. Despite its increasing relevance, no appropriate multidimensional outcome measures exist for the largest...

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Publicat a:Palliat Med
Autors principals: Pelke, Sophie, Wager, Julia, Claus, Benedikt B., Zernikow, Boris, Reuther, Mandira
Format: Artigo
Idioma:Inglês
Publicat: SAGE Publications 2020
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7975858/
https://ncbi.nlm.nih.gov/pubmed/33339481
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/0269216320975626
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