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Involving people affected by a rare condition in shaping future genomic research

BACKGROUND: There is evidence that involving potential participants and the public in co-designing research can improve the quality of the study design, recruitment and acceptability of the research, but appropriate methodologies for doing this are not always clear. In this study we co-designed a wa...

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Detalhes bibliográficos
Publicado no:Res Involv Engagem
Main Authors: Nunn, Jack S., Gwynne, Kylie, Gray, Sarah, Lacaze, Paul
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7958104/
https://ncbi.nlm.nih.gov/pubmed/33722276
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s40900-021-00256-3
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