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Involving people affected by a rare condition in shaping future genomic research

BACKGROUND: There is evidence that involving potential participants and the public in co-designing research can improve the quality of the study design, recruitment and acceptability of the research, but appropriate methodologies for doing this are not always clear. In this study we co-designed a wa...

Πλήρης περιγραφή

Αποθηκεύτηκε σε:
Λεπτομέρειες βιβλιογραφικής εγγραφής
Τόπος έκδοσης:Res Involv Engagem
Κύριοι συγγραφείς: Nunn, Jack S., Gwynne, Kylie, Gray, Sarah, Lacaze, Paul
Μορφή: Artigo
Γλώσσα:Inglês
Έκδοση: BioMed Central 2021
Θέματα:
Διαθέσιμο Online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7958104/
https://ncbi.nlm.nih.gov/pubmed/33722276
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s40900-021-00256-3
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