Implementing a tracking system for confirmatory diagnostic results after positive newborn screening for cystic fibrosis—implications for process quality and patient care

Newborn screening for cystic fibrosis (CF-NBS) was introduced in Germany in 2016. Currently, systematic follow-up of positive CF-NBS results is not implemented or reimbursed in the NBS program. We investigated results of confirmatory testing over 24 months after implementation of CF-NBS for a large...

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Publicat a:Eur J Pediatr
Autors principals: Gramer, Gwendolyn, Brockow, Inken, Labitzke, Christiane, Fang-Hoffmann, Junmin, Beivers, Andreas, Feyh, Patrik, Hoffmann, Georg F., Nennstiel, Uta, Sommerburg, Olaf
Format: Artigo
Idioma:Inglês
Publicat: Springer Berlin Heidelberg 2020
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Original Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7940155/
https://ncbi.nlm.nih.gov/pubmed/33104872
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s00431-020-03849-4
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