Engaging community stakeholders in research on best practices for clinical genomic sequencing

AIM: Maximizing the utility and equity of genomic sequencing integration in clinical care requires engaging patients, their families, and communities. The NCGENES 2 study explores the impact of engagement between clinicians and caregivers of children with undiagnosed conditions in the context of a d...

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Pubblicato in:Per Med
Autori principali: Griesemer, Ida, Staley, Brooke S, Lightfoot, Alexandra F, Bain, Lizzy, Byrd, Derrick, Conway, Carol, Grant, Tracey L, Leach, Barbara, Milko, Laura V, Mollison, Lonna, Porter, Nadiah, Reid, Sharron, Smith, Gerri, Waltz, Margaret, Berg, Jonathan S, Rini, Christine, O’Daniel, Julianne M
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2020
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7938705/
https://ncbi.nlm.nih.gov/pubmed/33026293
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2217/pme-2020-0074
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