Parent–child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish–German cross-sectional study

BACKGROUND: The aim was to compare parent and child-reported health-related quality of life (HRQOL) of children born with esophageal atresia (EA) and determine factors that affect the level of parent–child agreement. METHODS: We included 63 parent–child dyads of children born with EA aged 8–18 from...

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Veröffentlicht in:Orphanet J Rare Dis
Hauptverfasser: Witt, Stefanie, Dellenmark-Blom, Michaela, Kuckuck, Susanne, Dingemann, Jens, Abrahamsson, Kate, Dingemann, Carmen, Chaplin, John Eric, Ure, Benno, Bullinger, Monika, Gatzinsky, Vladimir, Jönsson, Linus, Quitmann, Julia Hannah
Format: Artigo
Sprache:Inglês
Veröffentlicht: BioMed Central 2021
Schlagworte:
Research
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7937291/
https://ncbi.nlm.nih.gov/pubmed/33676542
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01748-x
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