A thematic study: impact of COVID-19 pandemic on rare disease organisations and patients across ten jurisdictions in the Asia Pacific region

BACKGROUND: This study assesses the areas and extent of impact of the Coronavirus Disease of 2019 (COVID-19) pandemic on rare disease (RD) organisations in the Asia Pacific region. There is no existing literature that focuses on such impact on RD organisations in any jurisdictions, nor RD population...

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Bibliografiske detaljer
Udgivet i:Orphanet J Rare Dis
Main Authors: Chung, Claudia Ching Yan, Ng, Yvette Nga Chung, Jain, Ritu, Chung, Brian Hon Yin
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2021
Fag:
Research
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7935006/
https://ncbi.nlm.nih.gov/pubmed/33673852
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01766-9
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