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Identifying children with Cystic Fibrosis in population-scale routinely collected data in Wales: A Retrospective Review

INTRODUCTION: The challenges in identifying a cohort of people with a rare condition can be addressed by routinely collected, population-scale electronic health record (EHR) data, which provide large volumes of data at a national level. This paper describes the challenges of accurately identifying a...

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Veröffentlicht in:Int J Popul Data Sci
Hauptverfasser: Griffiths, R, Schlüter, DK, Akbari, A, Cosgriff, R, Tucker, D, Taylor-Robinson, D
Format: Artigo
Sprache:Inglês
Veröffentlicht: Swansea University 2020
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Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7898022/
https://ncbi.nlm.nih.gov/pubmed/33644411
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.23889/ijpds.v5i1.1346
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